A guide to designing a dementia-friendly garden

Dementia affects hundreds of thousands of people every year, causing their brain to slowly decline. Staying active and healthy can help to slow down the spread of dementia and improve the quality of life for those with the condition. In this article, Nicky Roeber, Online Horticultural Expert at Wyevale Garden Centres, explains how you can create a dementia-friendly garden to help your loved one enjoy the outdoors safely.

Dementia is one of the biggest causes of disability in later life, with 1 in 6 people over the age of 80 suffering from the condition, and one person developing it every three minutes (Alzheimer’s Society). While there’s currently no cure, activities such as gardening can help to improve the well-being of someone with dementia.

The therapeutic and health benefits of nature are well understood, and by creating a safe outdoor space for your loved one, you can help to stimulate their senses and keep their brain active. Below you will find my advice on how you can do just that.

Think about the user

The first step to designing a dementia-friendly garden is to come up with a plan, and this needs to consider the user at each step. A good way to ensure the garden meets your loved one’s needs is to get them involved in the design process and incorporate elements that they will enjoy, whether that is certain plants, features, or animals.

As the designer, it’s important to consider the issues your loved one might face and try to minimise or eliminate them ahead of time. This means using surfaces that are non-slip, installing hand railings, using gentle ramps instead of steps, avoiding poisonous or sharp plants, and removing potential trip hazards.

Make it secure but natural

When designing a garden for someone with dementia, it’s important to take into consideration their mental state, and how this may change. For this reason, it’s wise to ensure that the garden is fully enclosed to stop them wandering off and ensure their safety. All boundaries and gates should be secured with locks, but they can be covered with garden elements such as shrubs and bushes to make them look more natural and less intimidating.

The layout should be simple and easy to understand, with paths that loop back on themselves to prevent getting lost. The paths also need to accommodate your loved one, so if they have trouble walking or require a wheelchair, consider creating wider paths and include plenty of areas to sit down and rest. It can also be a great idea to incorporate signs pointing to different elements of the garden so they can easily find their way around.

Provide stimulation

Gardens are already enjoyable on their own, but you can also fill them with plenty of stimulating activities and features to keep your loved one engaged. This can be based around their personal likes and dislikes. For example, if they’re a bit of a green thumb, planting a vegetable patch will allow your loved one to grow and care for their own produce. Equally, if they enjoy watching birds and other animals, think about how you can attract them to the garden.

Another thing to think about is stimulating the five senses. Water features and wind chimes can help bring the garden to life, while incorporating great scented plants such as thyme or lavender provide stimulation for their sense of smell. Make sure to add in lots of beautiful bright colours in the form of flowers and plants and you’ve got your own sensory garden.

Encourage wildlife

Watching animals can bring many benefits to people with all sorts of different conditions (Care UK), so bringing the garden to life by making it the perfect place for animals to gather is a great thing to do. Listening to birds can be incredibly relaxing, and making use of bird baths and feeders to attract them to the garden is a lovely way to draw them in.

Feeders can also be used to attract squirrels, while a mix of flowers such as lilacs and wisteria will bring the buzz of bees and butterflies. You could even leave an area of the garden as ‘wild’, making it a more natural habitat for all animals, giving you the chance to bring in hedgehogs.

Gardens are immensely enjoyable and can improve the quality of life for the elderly and those with dementia. Follow the tips in this guide and you’ll be able to create a space that your loved ones want to be in.

Rockin’ Robin helps Swindon Town make football dementia-friendly

Getting out and about, continuing with hobbies and socialising with friends are all important factors in helping people stave off the isolation that can so easily follow a diagnosis of dementia. So its great to hear that Rockin' Robin, Swindon Town's much loved mascot has taken the lead in helping the local football club do its bit to become a dementia-friendly place to visit.

Rockin' Robin is now officially a Dementia Friend, after an 8 strong group from Swindon Town Football in the Community Trust, took part in dementia awareness training delivered by the Alzheimer's Society.

Junior Development Officer from the club, James Sims, 21, said:
“I really enjoyed it and picked up some useful tips on how to help put people who are living with dementia more at ease and make adjustments so they can keep enjoying football, both as a player and supporter. I didn’t realise that dementia isn’t just about losing your memory, so this was a real eye opener.”

Becoming a Dementia Friend, a national initiative by the Alzheimer’s Society, gives people a little bit of information to help those living with dementia feel valued and included in their community.

There are already around 3,500 Dementia Friends in the Swindon area, including more than 150 council staff and councillors, and it is hoped this number will continue to grow, as more people want to get clued up.

Dementia is a disease of the brain, which affects the way people think, speak and do things. It affects people’s moods and motivations, particularly if the disease affects the part of the brain that controls emotions. Although there is no cure, there is medication and also lots of things people can do to reduce the impact and speed of its severity.​

Swindon residents can find out more about dementia and ways of coping with the condition at their local library, via The Reading Well Books on Prescription scheme. The 25 titles have been recommended by health experts and people with experience of dementia.

Councillor Brian Ford,Cabinet Member for Adults’ Health and Social Care, said:
“I’m delighted that Swindon Town Football in the Community Trust coaches and Rockin’ Robin have joined the scores of people in Swindon who are Dementia Friends. The more we’re all aware of and understand dementia, as individuals, businesses and part of the community, the greater support and empathy we can bring to those affected as well as their family and friends.”

To find out more about the Dementia Friends initiative, visit www.dementiafriends.org.uk

Source: www.thisiswiltshire.co.uk

How early diagnosis can help people live well with dementia in Swindon

Fear can often prevent people worried about possible dementia symptoms from seeking the help and reassurance they so desperately need. But in a bid to remove the stigma surrounding dementia, Swindon Dementia Action Alliance are determined to help make Swindon a truly dementia-friendly place to live.



With the aim of improving understanding and awareness of the needs of people living with dementia, the alliance has teamed up with the Alzheimer's Society to provide free, hour long information sessions to help the whole community take shared responsibility for improving the lives of those affected by the disease.

Seeking help early is one of the alliance's primary messages. 

"Fear of dementia can make people put their head in the sand and not go and see their GP about symptoms they may be having", explains a spokesman for the Alliance.

"However an early diagnosis can make a positive difference. There is no denying it will be an emotional time but diagnosis can lead to identifying services that can help, some welfare benefits you may be entitled to, and there are some drugs that can help keep people living with some types of dementia in the earlier stages for longer.

Of course, the doctor may also discover you don’t have dementia but a different condition that shows similar symptoms but can be treated in a different way, such as infection, thyroid problems and depression for example."

If diagnosis is made early it becomes possible to make plans and introduce changes that can have a significant impact on a person's ability to live well with the disease.

It's important to remember that diagnosis may provide a label, but life doesn't end there.

"After a diagnosis, someone won’t magically change overnight, the label will stay there, but who that person was before that label was applied is still there too. It’s important to remember the person and what makes them happy in life and continue with this where possible."

A few simple changes to the home environment can also make a big difference in making everyday tasks easier to cope with.

"When the environment is not quite right for someone living with dementia, it can make symptoms worse. A common symptom in people living with dementia are sight and perception problems. There may be nothing wrong with their eyes but how these signals are interpreted in the brain can go awry."​

"A change in colour or contrast in a doorway threshold might look like a step, or a black mat on the floor might look like a hole, a door the same colour as the skirting and wall might become invisible. You can see how confusion and agitation may happen more often, especially if you need the loo but can’t find the way out of a room."

Staying active and maintaining social contacts is similarly important.

"Some of the difficulties faced by people living with dementia are not due to the damage to their brain but caused by difficulties in understanding and relating to their environment. In the same way, someone who has nothing to do may become withdrawn, this is not a symptom of the dementia but a result of what is happening around them and a lack of stimulation and purpose. Factors like the ones mentioned can be changed and this is really important to understand as it can help people with dementia to live well."

The information sessions run by the Alzhieimer's Society are an hour long, are free to attend, and everyone is welcome. Visit www.dementiafriends.org.uk to find a session running locally or watch their online video.

Source: www.thisiswiltshire.co.uk 10/05/17

Forget-me-Not dementia support centre celebrates 20 years of service in Swindon

The Forget-me-Not centre in Park South has become a haven for people living with early onset dementia in the Swindon area.  Spearheading a unique approach to counteracting the progress of the symptoms of dementia, it is one of just a handful of services in the country to offer an activity focussed programme.

As the centre prepares to celebrate an incredible 20 years of service, Marion Sauvebois paid the 5 strong team a visit to find out more. Below is her article for the Swindon Advertiser...

 " It began as a nomadic operation run out of car boots and community centres.

A single-minded band of carers drove the length and breadth of Swindon, lugging their own equipment around, setting up in halls and boxy meeting rooms, before packing up and zipping off again, wherever their dementia services were needed.

Encouraging patients to reclaim their lives through occupational therapy, recapture memories and, crucially, ward off the march of the condition was a unique and rather bold proposition when Forget-Me-Not was first pioneered in the town in 1996.

Now a formal centre in Park South, it marks its 20th anniversary this year.



The support team in the Forget-Me-Not garden

“It has had many guises,” concedes centre manager and occupational therapist Darren Davies with a smile. “And even now after 20 years it’s still unique and revolutionary. There is nothing else like it in Wiltshire and there are very few services like it in the whole country.”

“We used to go from building to building,” recalls dementia support worker Sam Cullen, who joined the service 15 years ago. “It’s changed a lot over the years but I probably remember every single client. It’s the people who make this place.”

“It’s a shame that after 20 years, services like this are still so unusual,” adds her colleague Jan O’Donnell, Forget-Me-Not’s longest-serving support worker with 19 years under her belt.

Activity focussed support for early-onset dementia

Occupational therapy provides support for people whose health prevents them from doing the daily tasks.

Forget-Me-Not’s occupational therapist Esther Jones’s role is to identify strengths and difficulties users encounter in everyday life, whether it be memory related, going shopping alone, taking the bus, cooking, or dealing with money. This is done through a range of activities including physical exercise, domestic workshops or craft projects. The goal is to support people with early onset dementia to maintain, regain, or improve their independence by using different techniques, changing their environment, using more adapted equipment or prompt cards.

“We don’t think in terms of diagnosis, but in terms of individuals and how we can help them do the things they want and used to do,” says Esther, the only full-time member of staff among the centre’s five-strong team.

Confidence building

“One of the typical presentations of dementia is that people stop doing things because they lose motivation and confidence or because their families are scared or worried they might hurt themselves. So we help give them strategies and build things into their routine so they can carry on with their daily life.”

The centre, which is run by the region’s mental health services AWP, made Park South its permanent home nine years ago and currently welcomes 30 users.

Open three to four days a week, it offers users the chance to join in art workshops, take part in sports like badminton, hiking or sailing or enjoy pub lunches. Patients are also encouraged to prepare meals together. Everyone is assigned a specific task; for example shopping – especially if they struggle with disorientation – peeling vegetables or cooking.



The welcoming kitchen at the Forget-Me-Not Centre

An estimated 2,280 people are living with dementia in Swindon and nearly 7,000 in Wiltshire. Dementia is an umbrella term for a set of symptoms including memory loss, difficulties with thinking, problem-solving or language and impaired judgement. It occurs when the brain is damaged by diseases, such as Alzheimer’s or a series of strokes.

Most people think of the condition as affecting memory only, but it also impacts the way people perceive the world around them, including their sense of orientation, sight or spatial awareness.

Activity focussed approach to dementia support

“It’s really about bringing back some normality to their lives,” says Darren. “Encouraging people to do things, and carry on with as normal a life as possible.”

Over the years, Forget-Me-Not has proved a haven for scores of dementia sufferers.

“If you get something wrong here, you’re not judged,” says Sandy Read, 69, from North Swindon, who was diagnosed with dementia 12 years ago. “But it’s so different on the street. I need extra time to think now to be able to answer questions and if I’m in a shop I soon forget where I am. I’ve been standing in front of a shop, not knowing where I was and someone saw me and called me a stupid cow.”

At the mention of the offhand insult fellow users shake their heads in unison. “I’m not surprised,” one of them chimes in.

“The companionship we get here is very important,” continues Sandy. “We support each other emotionally. Friendship here goes beyond anything we would get on the outside.”

Tackling isolation

Forget-Me-Not has also been instrumental in helping 67-year-old Roy James to rebuild his sapped confidence and pull him out of isolation following the devastating diagnosis.

“This is my family now,” says Roy, from Park South, who was diagnosed at the age of 51 and joined Forget-Me-Not six years ago. “When you get this diagnosis you feel you’re going to forget everything you know the next day. As far as you’re concerned you’re the only one who suffers with this; it’s not until you come here that you realise you’re not alone. A lot of people get very isolated after they’re diagnosed. They don’t do anything and don’t go anywhere and you lose a lot more skills quickly on your own.”

“The sooner people realise that, if we had more centres like this there would not be such a need for care homes because people would live independently longer, the better,” says Sandy.

Esther nods: “We help the health services by helping people to live independently and stay in their homes longer. It’s more cost-effective. We want to help show that activities work and help people have a better quality of life. What’s important to remember is that we’re all the same inside and we all deserve a good quality of life.”

While sufferers and their families face undeniable challenges, Roy is determined to dispel the myths surrounding dementia and prove it is possible to lead a fulfilling life for many years, despite the relentless progression of the disease.

“We’re still people,” says the former bookshop manager, pausing briefly before adding firmly: “Intelligent people. Word-finding can be a problem occasionally and you gradually go downhill.

“I’ve blown up three cookers because I forgot they were on. I’ve lost some of my skills but with determination you pick them up again. There is a life after dementia. I woke up this morning and I had a pulse. It’s good enough to get up.”

“Because you can’t do something today doesn’t mean you won’t be able to tomorrow,” reasons Sandy. "That skill isn't always gone forever."

“You just have to keep using your brain and challenging it. You try hard and you go on living well. I have.”

Forget-Me-Not is based at Whitbourne House, Park South, SN3 2HL.
For more details call 01793 436775 or go to www.awp.nhs.uk

Article by Marion Sauvebois, first published in The Swindon Advertiser 21/09/16

Thamesdown buses become dementia friendly

Thamesdown Transport is encouraging all its drivers to sign up to become Dementia Friends in a bid to make travelling on their buses easier and less stressful for passengers living with dementia.

The Dementia Friends initiative from the Alzheimer's Society aims to raise public awareness of the difficulties people living with dementia face, and how everyone in the community can help support them to make life a little easier.

Peter Oliver, commercial director at Thamesdown, said: “All of our drivers are encouraged to sign up to be a Dementia Friend. Having Dementia can make people feel isolated and apprehensive about going out and so our drivers can spot the signs and make getting the bus easier, whether that’s giving them the time they need to board or use their ticket, or identifying when someone might be confused due to their dementia and helping them get where they need to be.”

Thanks to the efforts of the company's driver instructors, Paul Banham and Phil Bailey, who have trained as Dementia Champions,  each bus driver will complete the dementia module as part of their customer training.

The training covers the common difficulties people with dementia experience, including memory loss, problems communicating and confusion about time and place, and what drivers should do in order to make travelling easier and a much less stressful experience.

It is brilliant to see Thamesdown Transport committing to raise awareness of dementia to their drivers and customer facing staff.

Bus drivers understanding a bit more about dementia will ease the difficulties people with dementia face, supporting them to travel and live independently for longer. This initiative is a major contribution to other work that is being developed in Swindon to ensure people with dementia are valued and included in their community.

Chris Atkinson 
Operations Manager South East for the Alzheimer's Society

So far 52 of the company's bus drivers have completed the training to become officially recognised as a Dementia Friend. They can be spotted by the blue flower badge they wear so why not watch out for them and say hello!

Source: www.thisiswiltshire.co.uk

Docudrama reveals the anger that spurred Terry Pratchett on as dementia took its hold

Terry Pratchett was simply not prepared to just give up when he was diagnosed with Alzheimer's Disease in 2007. For the  7 years until his death aged just 66 in 2015, he worked relentlessly to raise awareness and understanding about dementia in all its forms, campaign and raise funds for the Alzheimer's Society and, inspiringly, write a further 7 novels, as well as start to record his own life story.

But behind this determination to keep going was a deep seated anger towards his illness which is revealed in a docudrama to be aired on BBC2 on 11th February.

Terry Pratchett : Back in Black, uses the notes from his unfinished autobiography to reveal his descent into what he described as "the haze of Alzheimer’s” and explore the childhood traumas that spurred him on to become one of Britain's most prolific and well loved authors.

The programme includes footage of Pratchett shortly before his death, and features an appearance from Rob Wilkins, the author's long-term assistant and collaborator on his autobiography.



Pratchett's autobiography was the last thing he worked on. Sadly it remains unfinished.
Photo: Alan Weller for The TImes

In a report for The Times, David Sanderson writes...

In the programme, Rob Wilkins,  who was collaborating on the unfinished autobiography, recalled the day in autumn 2007 when they both realised that ...something strange had happened”.

He said that Pratchett had come into his office saying, “The S on my keyboard has gone . . . Come on, what have you done with it?”

Wilkins reveals that towards the end of his life Pratchett became increasingly angered by his disease. “He could see how it was affecting him, how it was tripping him up and I knew we were up against it for time. We had to get the words down and with that white heat, with that white anger driving him to write seven whole novels through the haze of Alzheimer’s.”

It was late in 2014 that Pratchett realised that his writing days were over.

“We had had a good day working on the biography and he said to me, ‘Rob, Terry Pratchett is dead.’
Completely out of the blue.
I said, “Terry look at the words you have written today. It is fantastic." And he said, ‘No, no, Terry Pratchett is dead.’”



The author, whose series of Discworld novels sold more than 70 million copies and made him one of Britain’s most successful authors, died in March 2015, aged 66.

In the BBC2 programme, Terry Pratchett: Back in Black, which stars Paul Kaye in the title role, Pratchett also sheds light on his “humble childhood” and why he became a writer.

The son of a mechanic and a secretary he was inspired by The Wind in the Willows and got a job in his local library which he said was when he “was probably at my happiest”.

He was bullied at school and had a “mouthful of speech impediments that left me with a voice that sounds like David Bellamy with his hand caught inside an electric fire. But it was not the kids that really got to me, it was the crushing of my boyhood dreams by someone 3ft taller”.

Pratchett says that Bill Tame, the headmaster of Holtspur School in Beaconsfield, Buckinghamshire, took a “rather vicious dislike to me” and thought that “he could tell how successful you were going to be in later life by how well you could read or write at the age of six”.

Pratchett was more interested in “climbing the desks than working at them”.

His novels, set in a world held up by four elephants balanced on the back of a turtle, were dismissed by critics despite their popularity with readers. In the programme Pratchett says that the “feeling of somehow being inferior” created from his school experiences and literary criticisms was “hard to shake off”.

This anger however, had carried him “quite a long way”. he explained. Of his knighthood in the 2009 new year honours, he added:
“Not bad for a boy who was told that he would never amount to anything.”


Terry Pratchett - Dementia Friends

Pratchett made no secret of his diagnosis and campaigned tirelessly for The Alzheimer's Society.

Pratchett's own words on living with Alzheimer's  ....

On his Alzheimer’s, Pratchett wrote:

“On the first day of my journalistic career I saw my first corpse – some unfortunate chap fell down a hole in a farm and drowned in pig shit. All I can say is that, compared with his horrific demise, Alzheimer’s is a walk in the park. Except with Alzheimer’s my park keeps changing. The trees get up and walk over there, the benches go missing and the paths seem to be unwinding into particularly vindictive serpents."

“Imagine you are in a very, very, slow-motion car crash, nothing much seems to be happening at all, there might be the odd banging noise possibly, a little crunching sound here and there, a screw might pop out and spin across the dashboard as if it was in Apollo 13. But the radio is blasting rock’n’roll, the heaters are on and it doesn’t seem all that bad, except for the certain knowledge that at some point your head is going to go smashing through that windscreen.”

“I always dreamt that when I died I would be sat in a deckchair with a glass of brandy listening to Thomas Tallis on the iPod. But I had Alzheimer’s, so I forgot all about that.”

Source: The Times 3/2/17

Sundowning and dementia : How carers can help

Sundowning describes an increase in agitation, confusion or irritability that sets in towards the end of the day as the light starts to fade and gets worse during the evening and night.

Experienced by as many as 1 in 5 people living with Alzheimer’s Disease, it is most common in the mid to later stages of the disease, and although particularly associated with Alzheimer’s it also affects people living with other forms of dementia as well.

Coming as it does at the end of the day or middle of the night when carers are already tired and less able to cope with the inevitable frustration and interruption to sleep, it is often cited by loved ones as one of the most upsetting and troubling effects of dementia.​



Medics are unsure about the causes of sundowning but most agree that fading light in the evening and darkness at night are the main triggers.

Signs of sundowning to watch out for

Confusion

Irritability

Agitation

Distress

Disorientation

Becoming demanding or suspicious

Hearing or Seeing things that aren’t there

Yelling or Pacing

Factors that might contribute to sundowning behaviour

Less light and more shadows in the house can lead to confusion and fear.

An upset to the ‘internal body clock’, resulting from the disease’s damage to the brain, can cause a biological mix-up between night and day.

Disorientation resulting from an inability to distinguish between dreams and reality.

Reduced need for sleep and disturbance in sleep patterns common in older age.

Reaction to unintended body language from a carer as frustration and tiredness kick in at the end of a long and busy day of caregiving.

Discomfort (caused by thirst, hunger, pain), depression or boredom could all make the symptoms worse.

Coping strategies for dealing with sundowning behaviour

* First and foremost seek help…

In exactly the same way that airlines instruct those looking after others to put on their own oxygen mask before attending to others, carers need to look after their own needs first. If you are emotionally drained and physically exhausted, you won’t be in the best position to stay calm and collected under pressure.

All carers need help, either from other family members or a home care provider to give you a little respite. Take a nap if possible during the day, and try to keep in touch with friends and/or a support group to keep your spirits up.

* Talk to your doctor.

It is important to rule out physical ailments (such as urinary tract infections, sleep apnea, incontinence etc) that could be contributing to sleep problems, and then discuss possible ways forward to help your loved one.

*Try to work out the particular triggersthat prompt the agitation and confusion, and attempt to alleviate them.

Ways to help

Here are our some tried and tested coping strategies that can really help…

Keep household lighting bright and avoid dark shadows.

Everyone’s eyesight deteriorates with age, so increasing light levels by adding extra lamps and using brighter lightbulbs can reduce the potential for upset and confusion caused by darkness and shadows as the light begins to fade.

Close curtains as it becomes dark to reduce the possibility of confusion caused by reflections or glare.

Do everything you can to aid sleep at night.

Stay active during the day, discourage napping and encourage gentle exercise.

Avoid, or limit, things that could disturb sleep. Try to avoid alcohol or tobacco as far as possible, and limit caffeine intake to mornings only.

Have your main meal at lunchtime and keep the evening meal small and light to aid digestion before bedtime.

Create a comfortable and reassuring sleep environment. Ensure the temperature is comfortable, fit night lights to reduce darkness, and make sure a clock is easily visible.

Keep things calm in the evening.

Relaxing music, playing cards or dominoes, or even folding laundry can all provide gentle stress relieving activities to help you wind down in the evening before bed.

Bear in mind watching TV can cause stress if the person watching can’t follow what’s going on.

Avoid arguments, keep things calm and provide lots of reassurance to maintain a calm atmosphere.

Ensure a safe environment.

Set up a baby monitor, motion detector or door sensors to alert you if your loved one is moving about in the middle of night.

Fit window locks, use a gate to block the stairs and put away anything that could prove dangerous.

Use night lights to light up dark corners in the bedroom and mark the pathway to the bathroom.

If someone wakes up agitated....

Approach with a quiet, calm, and reassuring manner.

Find out if the person is uncomfortable or needs something.

Gently tell the person what time it is.

Don’t argue.

Provide reassurance that everything is ok.

Avoid any temptation to use physical restraint. If the person needs to pace, let them do so while providing reassurance and reminders that it’s still bedtime.

Article courtesy of www.localdementiaguide.co.uk

Art therapy sessions extended to help more people with dementia across Wiltshire

Popular art therapy sessions set up to support people living with dementia have been expanded in Wiltshire thanks to support from the Trowbridge based charity, Alzheimer's Support.

A weekly art group has been running successfully in Pewsey for the past 3 years, but now due to popular demand, a new group has been started in Holt, near Bradford on Avon, to allow more people to benefit.


Dementia art therapy

The Art Therapy Group in Holt

Art provides an enjoyable and uplifting activity for people to express themselves creatively and can help reduce tension and stress. The groups provide a social opportunity for people with early to mid stage dementia and their carers to get together and enjoy a stimulating couple of hours that can really enhance relaxation and promote a sense of wellbeing.

Art can be therapeutic for people with dementia, who are still able to be creative and enjoy colour, texture and form when other skills may be lost. It’s also very beneficial for people to get together socially and have an enjoyable time together in a group. All our groups are very friendly and people can work at their own pace or just do their own thing in the company of others.
Babs Harris
Alzheimer's Support Chief Executive                 

The Pewsey group takes place on Wednesday mornings at Bouverie Hall, and
the Holt group at Firlawns Care Home in Holt, Melksham on Thursday mornings. 

No previous artistic experience is needed to enjoy the groups. Everyone works at their own pace and the emphasis is on enjoyment, with fun and laughter along the way.

Both groups are led by art therapist Sarah Weeks who provides inspiration and ideas, though people can work on their own projects if they prefer. The groups are funded by the Wiltshire and Swindon Community Foundation and Morrisons Foundation and everything needed is provided, though a small charge is made to help cover the cost of materials.

“Our art group at Pewsey has been so successful that we were asked for some time to provide a similar group in the west of the county, so we were delighted to get the funding in place and to have found such a good venue. It’s a joint venture with Firlawns and the first time we have run a group for people living in the community in a care home environment. It’s a lovely room and it’s working out very well” added Ms Harris.

For more information, and to view a brochure on the art therapy groups, click on the link here to visit the Alzheimer's Support website, or telephone their office on 01225 776481.
http://www.alzheimerswiltshire.org.uk/services/art-group.html

How memory apps can support effective dementia care

As the number of people with dementia continues to grow, so does the the demand for innovative new technology to support them. In this article written for the Guardian, Anna Bawden explores the role memory apps can play in effective dementia care.

When Robert Armstrong was admitted to The Uplands care home in Shrewsbury, he had a habit of waking up in the middle of night and wandering about. At first staff thought he was just a poor sleeper, but the 68-year-old would become very aggressive when care workers tried to guide him back to bed. He would often need medication to calm him down. It wasn’t until care workers started working more closely with the family to map his life history that they discovered Armstrong had been a milkman for 40 years and thought he was getting up to go to his job.

“So when he woke up at 3am, the night staff gave him a cup of tea and biscuits and then he did his ‘rounds’,” says Mandy Thorn, managing director at Uplands. “Robert had a milk crate in his room and he went round leaving milk bottles outside all the residents’ doors. At 6am he had breakfast and went back to bed, while staff picked up the bottles and put them back in his crate, ready for the next day.”

Thorn says the effect was instant and transformed Armstrong’s quality of life until his death in early 2015. “We had no more aggression and no need for medication to calm him down. And he was really happy until the day he died.”

Thorn hopes the delay in finding out such crucial information will soon be a thing of the past. From September, Uplands will be using RemindMeCare, an app that uses reminiscence therapy to get people with dementia talking about their memories. Its software automatically creates content that matches the person with dementia’s life story. In addition to photos, the system pulls images of events, favourites places, films and music from the web to create a detailed multimedia profile of the person. This is then used to help stimulate conversation and memories enabling carers to build a better relationship with the individual.

For group activities, the software can work out shared interests and help several residents to take part. And family members can upload relevant information to their relative’s profile and be actively involved in their care. “The more that you know about an individual, the easier it is to care for them,” says Thorn. “It will transform our business, make us more efficient, so staff spend more time with our residents, not on paperwork. With ReMindMeCare you have a digital record [of activities and interventions], you don’t have to worry about writing it all down.”

RemindMeCare is the brainchild of Simon Hooper and Etienne Abrahams, who both had family members with dementia. When his mother got dementia, Hooper started to put her life story on to a tablet for her carers to use. “I realised that early memories were the key to communicating with those with dementia and to improving person-centred care, and that it needed tech to record them, so that the memories would not be lost and would be available to each carer in turn,” he says.

On meeting Abrahams at a party and discovering that he was building software to store his grandmother’s memories, photos and favourite music, they both realised there was a gap in the market and decided to develop a business. After a year’s planning, they raised money from care experts and crowdfunding and RemindMeCare was born in November 2015.

Samir Patel, owner of Oaklands Rest Home in the New Forest, Hampshire, which has been using the system since May, says: “It’s had a huge impact on our residents. It’s a nice way to engage with your loved one. You can still contribute to their life in a really positive way.”

Not all dementia apps are designed for use in care settings. This month saw the launch of two new apps that people with dementia can use independently (as well as with a carer, if they choose).

Book of You and Playlist for Life use photos, words and music to enable those with dementia to reminisce with carers, family and friends, about things that were important in their lives. These apps are part of a dementia citizens project run by the innovation charity Nesta. Both apps also aim to foster in-depth research on how technology can empower people with dementia to lead more fulfilling lives. Academics at Bangor and Glasgow Caledonian universities, who developed Book of You and Playlist for Life respectively, will conduct regular surveys with 500 users of the apps. “We want to show that technology improves the lives of those with dementia,” says John Loder, head of strategy at Nesta’shealth lab. “Who do these apps really work for and how?”

The data may also challenge stereotypes. Early testing for Playlist for Life found that dementia patients did not necessarily want to listen to West End musical hits or the Beatles. “It is very easy to make assumptions about people with dementia and what they are going to like. The only thing they really wanted to listen to was Adele,” says Loder. “They liked the fact that they are listening to the same music as their children and grandchildren.”

Article by Anna Bawden, first published in The Guardian on 23rd August 2016

Mediterranean diet may help maintain your brain health

It is now well established that your diet has a major impact on your health and much has been done to raise awareness of the effect changing your diet can have on protecting your heart. But now a US study has highlighted the fact that food can also have a beneficial effect on keeping your brain healthy, potentially lowering the risk of dementia later in life.

The study set out to test the effects of a Mediterranean diet high in fish, lean meat, legumes, nuts, whole grains, fruits, vegetables and healthy fats on 672 participants aged between 70 and 89 when they entered the study in 2004 at the Mayo Clinic Study of Aging.

Reporting on the study for Reuters, Carolyn Crist explains...

Participants described their diets in a survey and underwent tests for memory, executive function, language, visual-spatial skills and cognitive impairment. Researchers also used magnetic resonance imaging (MRI) to measure the cortical thickness of several regions of the brain.

“It suggests that a healthy dietary pattern and specific dietary components have impact on biomarkers of brain pathology,” senior researcher Rosebud Roberts of the Mayo Clinic’s Alzheimer’s Disease Research Center in Rochester, Minnesota, told Reuters Health by email.

Roberts and colleagues found that elderly patients with higher Mediterranean diet scores had higher cortical thickness in all lobes in the brain. Higher legume and fish intake, in particular, was associated with greater thickness.

The research team reported their findings on July 25 in the journal Alzheimer’s and Dementia.

The study didn’t track patients long enough to see whether they actually developed any cognitive problems later on, however.

Yian Gu, an epidemiologist at Columbia University Medical Center in New York City, pointed out to Reuters Health that the study can’t show whether diet actually causes less brain atrophy.

Gu wasn’t involved with the new study, but she and her team have found ties between the Mediterranean diet, brain volume and total brain matter in their own research.

But “these are observational studies, not clinical trials, so a causal relationship can’t be established,” Gu said.

"It’s possible, for example, that changes in brain structure result in poorer dietary habits", Gu said.

“As many people know, we don’t have a cure for Alzheimer’s disease, and there is a long period of time before onset. It’s important to find lifestyle factors that could prevent or delay the disease,” said Gu.

Although a doctor can’t prescribe a Mediterranean diet to elderly patients, it doesn’t hurt to follow it, Gu said.

“Specifically," noted Roberts, "a high intake of fish, vegetables and legumes are beneficial, whereas a high intake of simple sugars and carbohydrates may have adverse effects on the brain."

​Source: http://uk.reuters.com/article/us-health-brain-med-diet-idUKKCN10J2E3

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